andrew_in_drag: (Default)
I will forewarn you that this is a total rant. 

Here is some suck: I have hypermobility syndrome. This has been a recognised condition for perhaps about 30 years now, and yet it is still regarded as some kind of 'curiosity' or 'oddity' rather than a serious medical disorder. 

HMS is characterised by extreme flexibility, caused by having a different type of collagen in the joints. There are 9 diagnostic test manoeuvres for HMS, and I can do all of them. Therefore, I'm pretty fucking hypermobile. This has been established, I have regular physiotherapy, that's fine, whatever. 

I am sick of the attitude towards this condition in the medical profession. I llike to keep my outlook on it very lighthearted, because generally the pain is quite manageable. However, my disorder is not something to amuse your group of med students with, Mr Doctor. Go back to school. I am not gonna run through my complete range of "tricks" for their delight, especially knowing that performing these contortions is bad for my joints and will cause me more pain in the long run. 

Worse suck: sufferers of HMS are frequently affected differently by local anaesthesia. In my (quite common) case, I am either not affected at all, or it wears off super, super quickly. I don't know why this is, but it is a documented fact and established symptom of HMS. Bearing this in mind, I should get general anaesthesia for some procedures, no matter how "minor" you consider them to be, because when a procedure involves cutting open my abdomen, it feels like you are cutting open my abdomen

Unbelievable. I am so happy I passed out. HMS may be weird, but it needs to be taken SERIOUSLY! 

Okay, rant over. As you were! 

Date: 2012-10-21 06:28 pm (UTC)From: [identity profile] canadianpudding.livejournal.com
I just happened to come across this post and wanted to agree whole heartedly about everything that is said here!! There has been plently of times I've gone to a doctor and I've known more about the condition then them. Or if they do know what it is.. they basically act like it's not a big deal and I don't need painkillers or physiotherapy. It's incredibly frustrating and it does need to be taken more seriously!

Also, so many times I had work done on my teeth and was in agony.. only to be told I was being silly and overreacting.. at least I know that's not true, anymore! :P

Date: 2012-10-22 02:27 am (UTC)From: [identity profile] andrew-in-drag.livejournal.com
HOLLA. At least I got diagnosed physio, but the local anaesthetic one is always a bastard. I agree heartily with the teeth thing...because dentists are sadists.

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